Laelia Sky and Arthrogryposis

Laelia Being AWESOME!

In 2007, I had a dream that I was holding my niece, and she squirmed and I dropped her. She let out a blood curling scream and I woke up in tears.

We found out that my cousin, Lexi was pregnant, but our excitement was quickly turned to a healthy fear when we found out that her daughter, Laelia was diagnosed with something called “Arthrogryposis”. (http://www.laeliasky.com/about/ for more information.) The basics are that her muscles do not form properly and her joints are all fused together, so she can’t bend her elbows and knees like we can. (It’s much bigger than that, but I dumbed down as far as I could.)

I was scared to death to hold this baby when she was born because of my dream,  but since that time, I have never met a girl who was brighter or funnier. She is ALWAYS cracking me up. Here’s a video of her dancing to my song pocket change a few years ago.  (Yeah… I’m a proud uncle.)

This morning, she’s in Pennsylvania, having a serious surgery. I’d love it if you guys followed my cousin, Lexi’s blog, http://www.laeliasky.com/ and learned all about Arthrogryposis and spread the information with others.

Thanks so much for the support!
-j